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My Child is Autistic and I do not Know what to Do

Aug 17, 2007
As a parent, you do not have the time to consider why or how this happened, only what to do next. The most important thing to remember is that you are not alone in your struggle. By researching the disorder and finding others going through similar situations, you can help you child while still dealing with your own emotional response.

Know Your Rights: Laws and Autism

Join a support group for parents with autism. You can find these by contacting the national Autism Society of America. From there you can find local branches, many of which offer support groups for parents and families with an autistic child. Being in contact with other parents in a similar situation can not only help you feel less alone, but it can provide you with a myriad of resources.

A parent support group will also help point you in the direction of the best doctors, intervention programs, and workshops for both your child and your family. Find a support group for any other children you have as well.

Many parents forget that they are not the only ones who must learn to live and communicate with an autistic child. By locating a support group for your other children, you can help them from acting out or acting against the autistic child by teaching them about the illness. As a parent, you must create a supportive environment for the entire family in order to properly manage your child's illness.

Consider marriage counseling if you are married. An autistic child can put serious strain on a marriage, leading to escalating arguments, neglect of each other, and even perhaps blaming each other for the situation. Marriage counseling from the very beginning can help a couple through this discovery and rough transition, and help build a better supportive environment for your children. Your marriage should not end as a result of having an autistic child, but the sad fact is that many of them do. Prevent this by using one another for support and by understanding that you may need help to deal with one another now and in the future.

Most importantly, start on the path to becoming an expert. Many times pediatricians or psychiatrists are not experts on autism, which can lead to improper diagnoses or incorrect treatment options. As your child's best advocate, you must know everything you can about autism. Parents of Autistic Children can be a great resource; this organization offers training and workshops.

The ASA has a newsletter and also offers a variety of information, from diagnosing to treating. As always, remember that a support group of parents with autistic children can always provide you with books and research that focus on the reality of the situation. Educate yourself and those around you to provide the most beneficial things for your child-love and guidance.

If you or your child has autism, some of the most basic things you can study and learn are your rights. Every American citizen is protected under the constitution, and there are special laws that have been passed to help protect people with autism and other disabilities.

By knowing the laws that protect you or your autistic loved ones, you can live in a world that provides better opportunities to everyone, regardless of not only disability, but also race, gender, and ethnicity. This is simply the first step to creating a more tolerant world in general.

The first law with which you should become acquainted is I.D.E.A., or the Individuals with Disabilities Education Act. The I.D.E.A. covers children ages 3 to 21 and provides autistic children with the special educational programs they need. The I.D.E.A. gives parents the right to be involved with education decisions concerning their child made by the school.

Your child first needs to be assessed to qualify under the I.D.E.A., and this is best done by a private professional. In the end, your child has the right by law to receive a free public education that is appropriate for his or her skill level. If your public school has no such program, they are required to find one or create one at no cost to you.

Also become familiar with and knowledgeable about the American Disabilities Act. Under this act, discrimination due to disability is prohibited in the workforce, as well as with state and local government, public accommodations, the United States Congress, public transportation, and telecommunications. For example, if you are autistic, but have the skills to do a certain job, you cannot be refused the job because of your autism.

Other laws provide rights for people with autism so that they are constitutionally equal to others. One such law says that people with autism have the right to vote, and accommodations must be made so that this is possible. Another says that autistic individuals cannot be refused housing based on disability. Others provide equal rights in all other aspects of life,

and these should especially be studied if your loved one with autism is in a health care institution. By knowing the law and how it applies to yourself or others with autism, you can be sure that justice is upheld. If you have questions, local law officials should be ready and willing to answer you or provide you with material to answer your own questions.

Remember that ignorance of the law is not a valid excuse for anyone, so be an advocate for yourself or others with autism to prevent mistreatment.
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